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Joined: Jan 2016
Posts: 95,728 Likes: 2
Campfire Oracle
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Campfire Oracle
Joined: Jan 2016
Posts: 95,728 Likes: 2 |
As noted in another thread, I'm on 40mg daily, take it all at once in the mornings, and I feel great with no side affects, treating a sarcoidosis disorder. Will check labs at the end of the month to re-assess dosage. After 9 months of feeling like hell, the change is very welcome. GOD bless you pal. Youre in my prayers, Johnny.
Ecc 10:2 The heart of the wise inclines to the right, but that of a fool to the left.
A Nation which leaves God behind is soon left behind.
"The Lord never asked anyone to be a tax collector, lowyer, or Redskins fan".
I Dindo Nuffin
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Joined: Jan 2016
Posts: 95,728 Likes: 2
Campfire Oracle
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Campfire Oracle
Joined: Jan 2016
Posts: 95,728 Likes: 2 |
OP The Doc gives me some with antibiotics and have never had weird dreams or mean streak.
Says it makes the antibiotic work better.
Maybe it is the dose that is causing problems. Its the pred causing problems. Main one is its keeping you alive. You wouldn't be biotchin if you were daid.
Ecc 10:2 The heart of the wise inclines to the right, but that of a fool to the left.
A Nation which leaves God behind is soon left behind.
"The Lord never asked anyone to be a tax collector, lowyer, or Redskins fan".
I Dindo Nuffin
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Joined: Jan 2012
Posts: 67,176 Likes: 38
Campfire Kahuna
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Campfire Kahuna
Joined: Jan 2012
Posts: 67,176 Likes: 38 |
As noted in another thread, I'm on 40mg daily, take it all at once in the mornings, and I feel great with no side affects, treating a sarcoidosis disorder. Will check labs at the end of the month to re-assess dosage. After 9 months of feeling like hell, the change is very welcome. Hope you get some relief. I am supposing those labs will check inflammatory markers. I’ve had a parameter that my docs pull for acute phase reaction to inflammation, a ferritin level test. I don’t fully understand it’s meaning. Check back with us if youre able to share an update, I would be interested in what those test markers are looking at. Not being nosey, I’m just fascinated with that area of medicine My wife gets hydroxychloroquine for early rheumatoid arth markers. Bit she is stubborn and doesnt like that med or any meds. She is just eliminating wheat and bleached, enriched and processed foods. Actually for a few years and her inflammation is technically registerable on labs but she claims no effects or symptoms.
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Joined: Jan 2016
Posts: 95,728 Likes: 2
Campfire Oracle
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Campfire Oracle
Joined: Jan 2016
Posts: 95,728 Likes: 2 |
I have charged a lot of people for saving an eye. I have never charged for keeping anyone happy while saving that eye.
I would be rich, had I.
Ecc 10:2 The heart of the wise inclines to the right, but that of a fool to the left.
A Nation which leaves God behind is soon left behind.
"The Lord never asked anyone to be a tax collector, lowyer, or Redskins fan".
I Dindo Nuffin
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Joined: Aug 2005
Posts: 28,259 Likes: 6
Campfire Ranger
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Campfire Ranger
Joined: Aug 2005
Posts: 28,259 Likes: 6 |
No prob slum. I had a severe case of hypercalcemia, which led to all sorts of problems as you probably know, including below normal kidney function, digestive probs, fouled up bun, creatinine, vitamin D, loss of appetite, loss of 30lbs, etc. Lung biopsies revealed the sarcoidosis which was the root cause of it all.
It is irrelevant what you think. What matters is the TRUTH.
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Joined: Dec 2013
Posts: 44,470 Likes: 10
Campfire 'Bwana
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Campfire 'Bwana
Joined: Dec 2013
Posts: 44,470 Likes: 10 |
Without Prednisone, allergies would be making my life miserable.
Slaves get what they need. Free men get what they want. Rehabilitation is way overrated. Orwell wasn't wrong. GOA member disappointed NRA member 24HCF SEARCH
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Joined: Dec 2013
Posts: 2,459 Likes: 2
Campfire Regular
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Campfire Regular
Joined: Dec 2013
Posts: 2,459 Likes: 2 |
I once had gout in my ankle that narcotics, colchrys, allo, indomethacin couldn’t even touch. Absolutely horrible pain. Took 40mg prednisone at 8pm... couldn’t fall asleep because of the pain and because, well I found out it’s difficult to fall asleep when you take prednisone at night.
Woke up at 7am, but my work boots on and went to work. that’s as close to a miracle as I’ve ever experienced.
I know it ain’t good for you, and when I’ve had to take it, it’s 40mg x 4 days, 20mg x 4 days, 10mg x 4 days, and 5mg x 4 days.
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Joined: Nov 2008
Posts: 19,563 Likes: 4
Campfire Ranger
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Campfire Ranger
Joined: Nov 2008
Posts: 19,563 Likes: 4 |
I’ve taken it quite a few times over the years. For a gout flare up it’s amazing. Beats chopping your foot off with an axe which what I feel like doing when it gets bad. Also is nice to be able to breathe when asthma and allergies or lung infection kicks in. I have heard a lot of horror stories, but have never noticed anything odd myself when taking it.
My dogs, well that’s a different story. Aggression, constant drinking/peeing etc yeah absolutely.
MAGA
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Joined: Jan 2016
Posts: 95,728 Likes: 2
Campfire Oracle
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Campfire Oracle
Joined: Jan 2016
Posts: 95,728 Likes: 2 |
Thats scary, JG. Last i saw you looked like a cross between John Wayne and Paul Bunyon.
Heres hoping it passes soon, Johnny.
Ecc 10:2 The heart of the wise inclines to the right, but that of a fool to the left.
A Nation which leaves God behind is soon left behind.
"The Lord never asked anyone to be a tax collector, lowyer, or Redskins fan".
I Dindo Nuffin
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Joined: Dec 2011
Posts: 269
Campfire Member
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Campfire Member
Joined: Dec 2011
Posts: 269 |
Hi JG, I was diagnosed with pulmonary sarcoidosis a bunch of years ago. Unfortunately the doctors missed diagnosing it until I'd lost 42% of lung capacity, Started at 40 mg, as you have, but after the two year regime, it came back and had to do it all again. Good news is that was the end of it. Seven years on prednisone, But I've been in remission over 20 years, Sounds like you're tolerating the prednisone really well, I hope it kills those little granulomas and never comes back. Eileen Clarke
Last edited by Leenie3freezers; 03/12/21.
On appetites: "If I had to wait until I was hungry to eat, I'd never eat."
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Joined: Jan 2016
Posts: 95,728 Likes: 2
Campfire Oracle
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Campfire Oracle
Joined: Jan 2016
Posts: 95,728 Likes: 2 |
Hi JG, I was diagnosed with pulmonary sarcoidosis a bunch of years ago. Unfortunately the doctors missed diagnosing it until I'd lost 42% of lung capacity, Started at 40 mg, as you have, but after the two year regime, it came back and had to do it all again. Good news is that was the end of it. Seven years on prednisone, But I've been in remission over 20 years, Sounds like you're tolerating the prednisone really well, I hope it kills those little granulomas and never comes back. Eileen Clarke Praise and Glory be to you, Father in Heaven. Thank you Father, Lord God Almighty. You were right, Father, by your Grace, we did do miracles..
Last edited by jaguartx; 03/12/21.
Ecc 10:2 The heart of the wise inclines to the right, but that of a fool to the left.
A Nation which leaves God behind is soon left behind.
"The Lord never asked anyone to be a tax collector, lowyer, or Redskins fan".
I Dindo Nuffin
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Joined: Sep 2014
Posts: 21,854 Likes: 4
Campfire Ranger
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Campfire Ranger
Joined: Sep 2014
Posts: 21,854 Likes: 4 |
Have taken it multiple times as an adult for allergy issues.
The old WWII era sawbones we had as a kid handed it out like candy. Sinus issue, you got an envelope of "sinus" pills.
Know it's the same thing, I recognize the taste. Can't believe no one has mentioned that. Phuggin things start to resolve the instant they touch your lips. Can't avoid it, and it doesn't go away fast.
Last time I got them pur normal pharmacy was closed. Those ones must have been coated. Not too nasty to take.
Parents who say they have good kids..Usually don't!
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Joined: Jan 2016
Posts: 1,238
Campfire Regular
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Campfire Regular
Joined: Jan 2016
Posts: 1,238 |
I take 5 mg every other day for the residual inflammation in my lungs from Covid. I think it has helped.
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Joined: Feb 2020
Posts: 1,400
Campfire Regular
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Campfire Regular
Joined: Feb 2020
Posts: 1,400 |
I have a scrip for emergencies when I feel a COPD attack starting. Big blast then 12 days decreasing every third day. In January I put on 20 # in those 12 days. Lost about 10# of it since, but had to hit it again this week. Glad to be able to sleep most of the night without waking up trying to catch me breath every 2 hours. I noticed dull headache toward the end of the treatment. Oh well. It beats the alternative.
Sacred cows make good burgers when you know what temperature to cook them at.-Rev. Billy
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Joined: Dec 2003
Posts: 86,271 Likes: 25
Campfire Oracle
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Campfire Oracle
Joined: Dec 2003
Posts: 86,271 Likes: 25 |
Hurt my back once, Doc gave me a 10 day bender, it is from the devil and will cause a man to wind up on death row if not careful, i hate that shlt! G5 Remember this for the next time you have a back injury. Dexamethasone (Decadron) Ask your doc about it. I’ve used it twice for back problems. PFM, it is.
If you take the time it takes, it takes less time. --Pat Parelli
American by birth; Alaskan by choice. --ironbender
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Joined: Jun 2007
Posts: 29,786
Campfire Ranger
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Campfire Ranger
Joined: Jun 2007
Posts: 29,786 |
Has to be from the devil. Doc put me on a pack 3 days ago. I just weighed myself. Up 12lbs. Helping some, not much, with joint pain and other symptoms I was having. But slight kidney ache and holy crap insomnia! Geez. 3 days to go. I had a small bottle of them for severe hay fever when I was roo shooting, one tablet fixed the issue and for the next several years every time I twisted an ankle or tore muscles I popped one, the one would take away the inflammation and allow me to keep working. That was a bottle of 25, I am not sure if they are that effective for everyone but they certainly worked for me, and with no side effects.
These are my opinions, feel free to disagree.
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Joined: Feb 2008
Posts: 293
Campfire Member
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Campfire Member
Joined: Feb 2008
Posts: 293 |
Taken it several times for poison oak and other skin conditions. Never had noticeable side effects. Sure does help with poison oak though.
Rick
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Joined: Nov 2004
Posts: 10,025 Likes: 3
Campfire Outfitter
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Campfire Outfitter
Joined: Nov 2004
Posts: 10,025 Likes: 3 |
Im supposed to be cutting back on it. I tried to cut back about a month ago and ended up with a very stolen and painful foot and ankle. I thought I had finally got the flare calmed down and to night its back with a vengeance. I don't want to be up all night again so I'm going to take 20 MG now. I've gained weight on it but it's bought me some serious pain reduction. I wish I'd did have bad side effects because it really helps my spondylitis.
Bb
Last edited by Burleyboy; 03/13/21.
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Joined: Dec 2002
Posts: 12,329
Campfire Outfitter
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Campfire Outfitter
Joined: Dec 2002
Posts: 12,329 |
. . . but Lordy, the dreams! Yikes.
I got into a life-changing event back in '91. The doc started treating a bad chest cold with pred and theophylline (anti-asthmatic). It kept getting worse. He kept upping the dosages. I finally woke up in a local Oncology ward with my lungs filling with fluid, and ranting like a lunatic. Prednizone psychosis. I invited the nuns in for a demonstration of levitation and stigmata. They didn't know what I had, but they knew it was serious.
It took months before a thoracic specialist suggested I get off all the meds. I turned out I was allergic to the theophylline. I got weaned off everything, and gradually got back to normal. The pred-related stuff went away in a month. The coughing lasted another 18 months.
It took another couple of years before I met a 2-digit liver recipient who'd started the local self-help group and he started explaining the effects of steroids on your noggin. He'd been one of the first couple dozen liver recipients and they'd had to experiment a lot on him to figure out how to keep his body from rejecting the liver. He'd suffered tremendously.
My Dad had a somewhat similar reaction to Pred in high doses when he got a bad rash. Luckily I'd had the experience and was able to tell him he wasn't going insane.
Last edited by shaman; 03/13/21.
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Joined: Aug 2020
Posts: 1,889
Campfire Regular
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Campfire Regular
Joined: Aug 2020
Posts: 1,889 |
Taken it in some dose 4-5 yrs. Only take 5 mg a day now. The higher doses I took caused cataracts. Gained 40 lbs which I have now lost, have thin skin. It caused bad insomnia, and I stayed angry all the time. It's good for short duration, but not long term at high doses. I've heard it called the devil's tic tac. The stuff is great to get you out of trouble, but try to find another plan for long term.
Romans 5:1
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