Home Forums Hunting & Shooting Hunter's Campfire Crohn's disease

Nessmuk, sorry to hear about your medical adventures. Good luck getting the problem addressed satisfactorily. And good luck starting up the smithing thing too.

Not Crohn's, but I've got lymphocytic colitis.

Started with a constant battle with the runs a few years back. The "Best Medical System in the World" did as someone else here mentioned, tried to treat the symptoms instead of trying to figure it out. Trips to the Docs with a try this "FODMAP" diet. Oh, maybe you're allergic to gluten. Scheidt in this and bring us back a sample, nope no parasites, no blood. Did that twice (I knew it wasn't giardia as I've had that. Twice)

Finally, after 7 + months of not knowing when it was going to hit, carrying TP or papertowels in my back pocket so I could just drop trou like I was living in a third world country (or a homeless camp) I was "allowed" (by the insurance companies) to go to the specialist that has done a few colonoscopies on me.

Fuggers, Not the gastroenterologist, but all them other fuggers. I even switched primary care over all that diet and "we don't know" scheidt. The new doc got the process started to get scoped.

That gastro dude took a biopsy, called me back a day later, told me what it was and said we have an easy fix. Budesonide, 3mg pills, start at 3 per day for a couple of weeks, then try two for a bit, then try one if that works. I've been taking one a day for awhile now. Back to my regular self with just that.

Imagine going to the auto shop because you have a wobble at 60MPH. And you get answers like this. "well, let's try inflating your tires a bit more" "well, that didn't work, let's try rotating the tires" " well, maybe we should rebalance them" " Hmmm, we're stumped, maybe just don't drive at 60 MPH, hit 58 and speed up fast to 65" And then you get the OK by the powers that be to put the thing up on a rack and check the front end parts and discover a bad ball joint.

Let's not look for a cause, let's just treat symptoms. That seems to be the way the "Best Medical System in the World" works most times.

Anyone here have it as well?
How has it affected you?
Mine was stage 4 before my sore ass got to the right doctor. Mostly my fault, I thought I just had irritable bowel until I didn't just have that.
I'm wondering for real life, long term experience.

I had the runs for about 6 weeks after eating a whopper at Burger King. Thought for sure I had it.
Got a bad enough time with my guts from transplant meds.

The steroids have helped immensely. Drainage finally has let off and a lot of stuff drained that hadn't in almost a year of having the fistula. I'm not in constant pain / discomfort. It now is mostly toilet time related and an abrasive white "sand" when the Crohn's flairs. It's a med related thing. I very stupidly had chicken noodle soup and cereal yesterday. I'm still figuring this out.

Sorry to hear that Slum.

Eliminate carbohydrates from your food, as carbs cause inflammation.

Try a carnivore diet.

My 19 year old son has Crohn’s. Crohn’s is an autoimmune disease that causes the body to attack itself causing gastrointestinal inflammation. My son’s started when he was 10. It’s severe and he was in and out of hospitals for extended stays and missed diagnosis. His appendix burst as a result of Crohn’s infections but the doctors initially thought that his problems were related to complications from his appendix.

A Doctor at a local hospital that was part of Michigan Mott Children’s Hospital system referred him to Mott Children’s Hospital. They diagnosed what it was over a few weeks of outpatient testing.

I can’t say enough good things about that hospital. Absolutely great doctors and nurses. Very compassionate and great at what they do.

He had several fistulas that he had to have cut out and he spent several weeks total over an 18 month span in the hospital before being diagnosed and then after his final surgeries.

He takes daily meds and gets a Remicade infusion at home every 8 weeks. He’s had zero Health problems since getting on Remicade. It’s an immune suppressant which sucks. He gets a few colds per year but has had no Crohn’s related problems for about 8 years now. He’s a big strong healthy kid and doing really well since being diagnosed and treated with the right meds. The only side effects for him have been being more susceptible to colds.

My son shortly before being released after his final surgery. The UM athletes would come see the kids every week in addition to magic shows, crafts, ect. Pictured in back is ex Michigan QB Devin Gardner. Gardner was a first rate person that went out of his way to spend extra time getting to know my son and talking football with him.