Update on Savannah...please if you have not already PM me to donate what you can!
Dan's wife posted another blog update today. All of her blogs can be read at:
http://www.caringbridge.org/visit/oursavannahgrace/journalYesterday (Tuesday) was a chemo day for Savannah. We did get some special recognition from Amy and that makes me think we're doing something right even though I feel helpless. Please continue to keep them all in your thoughts and prayers. Here is the content of her blog:
I'm hungry!
Written 20 hours ago by Amy McIntosh
We made it through another Tuesday, and while it wasn't pleasant, it somehow felt easier. Savannah would probably disagree, as she was her usual "anti clinic" self. Can't say I blame her. We started things off with more numbing cream in which Savannah kept screaming, "Owie! Owie!", numbing cream doesn't hurt, at all. We then had vitals taken with much the same response, again no pain. Doctor came for a visit and needed to speak with Dan and I about treatment, blood counts, meds, etc and sadly none of us use sign language, and or speak a foreign language well enough. Savannah has radar ears. A few of my favorite comments (said with a not so quiet voice) during our chat, "Did you say medicine?!?!" "Don't look at me!!" "Blood?! No!!!" "Don't talk about me!!". I mention these not to make you feel badly for her, but because at this point Dan and I find humor in these moments. Our girl has now been on steroids for 3 weeks and as I've said before, they are intense. Her face and belly have largely expanded, she literally cannot think about anything other than food, she has developed numerous nervous ticks, her muscles are very affected and cause her to stumble and need help up stairs etc, and last but not least, causes even higher anxiety. So in saying that we find a very small bit of humor in her anxiety dont think us cruel, it somehow helps us get through it and we know that this too shall pass, and is largely steroid related. It's such a mental game with her and at some point we hope she gets to where she feels safe with her surroundings, knowing that we are all there to help her get better. To continue with the appointment update, the IV and chemo went without any real issues and a huge plus, her meds are working and all her counts look great. PTL!
As we were leaving she was literally singing, "We are going home!", over and over and with a smile on her face. That is by far the best part of the day. Thankfully, she slept all the way back to Eugene, but the moment she wakes up on these drug induced chemo days she spends the rest of the day in a total funk. And by funk I mean inconsolably crying, yelling and screaming at us, and wanting nothing but to eat eat eat. Lord give us strength! Those are the moments that God's gift of patience comes in handy, and usually does, but boy is it hard!
Have I mentioned that I SO appreciate all the thoughts and prayers, especially on these days? Because I do! Dan and I both. I love getting texts and messages from family and friends letting me know they are thinking of us and praying for our girl. Bless you all! She is covered and we feel it, so thank you, thank you, thank you.
We received our future appointment dates for April and it looks like its going to be a doozy, a normal regiment for her type of Leukemia but still a hard pill to swallow. She has surgery to place the port, get a spinal tap, and bone marrow biopsy all on Monday, then it's back every week for more chemo, this time each treatment being put into her spine. Overwhelming for us newbies, but we know that it is all for her good and that God will get us through it. Amen!
I want to end with another GINORMOUS thank you to all our friends at 24 Campfire, Snipers Hide, and SIG forums. You have gone above and beyond helping our family, people you don't even know, yet feel led to help in any way you can. Your generosity is humbling. Special thanks to Steve B. at Campfire for all your hard work fundraising for our sweet girl. And for those of you that we haven't thanked directly, please know how much we appreciate you and all the love you have shown Savannah. God bless you all!