Some folks have more joint space than others.
That;s what the shoulder dr thought.
Then she tore something doing mild workout, and we got it checked.
Location not where supposed to be, and he said only seen it once before, sent us to tissue disorder guy (supposed to be top 1 or 2 in nation).
Said she is classic case of Ehlers Danlos, has all the boxes checked.
Low blood volume, due to female stuff. Can only drink so much fluid, take salt........still get anemic/low blood volume, which the heart tries to counter by beating more
(adrenaline response)..........so the lifters are ticking and she's hitting the gas.
Makes for a lot of dynamics, as if a 22 yr old woman wouldn't have enough LOL
So they put her on beta blocker, lowest dose, and that helped, but made her tired. Got the timing of it such she got back to functional.
Now her BP has dropped more (hopefully not the heart deal).
She got a pic line and does saline every other day.
Its temporary, seemed to help a bit.......but with all the other crap happening.........not.
They want to do a port but her blood vessels funky w the disorder, even though they haven't classified it as vascular type yet.
Maybe it is, maybe it isn't.
Think vascular median life expectancy is 48, usually an incident before then making things bad.
Some people are just more "bendy" than others.........called double jointed or flexible.
But some are hypermobile.
This disorder often not identified. And there are varying degrees of it.
Its not some female made up BS, like the first idiot therapist tried to say. Don't get me started on how inept and quack the mental health people are.
