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Prayer# for you daughter! Nothing worse than having a sick child....you feel so helpless! memtb


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Prayers for your daughters healing, comforting, and strength and for your comforting and strength.
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Quick update: Julia is Covid negative. They're moving her to another non-PICU pediatric room tonight. Hopefully, it will have a window. I will try to respond to everyone later - I'm a bit drained right now.

They have also said that they don't think it's a viral infection - apparently, her blood work did not indicate such, but I'm not certain how they came to this conclusion. I hope they can get to the bottom of this...


l told my pap and mam I was going to be a mountain man; acted like they was gut-shot. Make your life go here. Here's where the peoples is. Mother Gue, I says, the Rocky Mountains is the marrow of the world, and by God, I was right.
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First step to better, much. better news.

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Wow. I remember not long ago sending you Tabasco Sauce because you did not want to get out. Happy to read that your little girl is slowly awakening.


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Prayers for the young lady.

When you say thyroid was normal, was it just TSH? Or did they actually test Free T3, Free T4, TPO and TGaB antibodies? TSI? Cant just test TSH(pituitary) levels when she may be suffering Hashimotots or Graves. How about cortisol levels(Adrenals?)

All I can say is, God is good. Shes in good hands.

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Originally Posted by High_Noon
Update: I dropped off a care package for my daughter, clothes, toiletries, laptop computer, video games, books, magazines, all sorts of snacks, water, & art supplies. I also provided snacks, water and chick-mags for the ex. All this made Julia (my daughter) exceedingly happy, which caused my eyes to water a bit. She was so happy, in fact, that her pulse increased from today’s low of 69 up to 95. Nothing is easy, however. When I dropped off her bags at the Security office, they told me they would take it right up to her – that took nearly 2 hours and multiple phone calls.

I also found out that as of an hour ago the hospital had zero pediatric Covid cases.

A problem with me not able to be there with my daughter is that I am getting information 2nd and 3rd hand, and much of it is erroneous. I found out that Julia is not in a “Covid Ward.” She is in PICU (Pediatric Intensive Care Unit) isolated in a private room. Apparently, she is there until they rule out the Kung Flu.

I may have given y’all a couple of false impressions:

1) Julia is in relatively good spirits. Other than her fluctuating heart rate that varies from 67 to 150, she is in no pain or discomfort. The increase pulse causes her to twitch and become a bit anxious, but does not cause her pain. Yesterday, when they stuck her repeatedly for the IV, I ran the nurse off and demanded an expert. They hurt her trying to find a vein and they got her blood all over the place. That is the only real pain she has experienced.

2) The ex-wife. For the most part, she really is a good and caring Mother and she earns a more than decent living as an SLP. We share custody 50/50 – no alimony or child support and between us, we are able to provide for our daughter – she is not left wanting. We get along just fine as long as I do whatever she wishes, but that is not very often. I simply will not agree to most of her ideas because a great many of her ideas are asinine. As soon as I question her, refuse to do what she asks, or simply say no, all Hell breaks loose and she resorts to insulting me in the meanest way possible, which I have never, ever done to her. She’s a chick after all and prone to fits of irrationality.

*****

I will now attempt to answer all your questions:

First, many thanks to Blu, hillbillybear, bluefish, Sako76, 12344mag, JamesJr, TRH, jwp475, tnscouter, Scotty, RichardAustin, fgold767, Ringman, Colorado14er, Stormin_norman, & Dennis81082 for all your thoughts and prayers.

EE: Thank you for the prayers. I hope your friend’s kids recovered well from the plague and he has recovered financially as well. It never ceases to amaze me that every day, America allows hordes of foreigners into our country without any medical screening at all. Not to mention Chiner, but Mexico, in particular, it responsible for the resurgence of Measles, Plague, Polio, etc. in our country. I see it first-hand here on the border.

Seafire: Thanks Jon, I appreciate your thoughts and prayers.

CCCC: Thank you Paul. We are doing our best to maintain a positive outlook, which is difficult when you’re surrounded by apparent incompetence. The service and attention Julia has received in the hospital is abysmal. Aside from the lack of attention from nurses and doctors, the breakfast they brought her had obviously been sitting out for hours and was ice cold and disgusting. It took them 3 hours for them to bring my ex a coffee and once they did it was ice cold. They have yet to give Julia any water and they keep making excuses. All of it is unacceptable. I am also worried about this Kung Flu test as I do not trust them and I do not trust the hospital or the doctors here to make a correct diagnosis – I have had first-hand experience with incorrect diagnosis here in El Paso.

CharlieFoxtrot: Thank you and I will continue to advocate for my daughter from afar, since they won’t allow me in to see her.

Superlight17b: Thank you sir. My daughter has probably had that messikan stomach bug 15 times since we’ve lived in EP. I have had it twice here in EP and, as you stated, it’s absolutely miserable and I also have never been so sick in my life. I never remember getting sick like that when I was a youngster – in Dallas.

Thank you bartman. Little girls are the best and she is indeed the most important thing in my life.

Miles: Thank you sir. I appreciate your kind words. Julia is indeed a special kind of ‘las and she is so much fun to be around. She always keeps me laughing – she’s absolutely hilarious – maybe that’s because while my ex was in labor I was telling pirate jokes the whole time. You wouldn’t believe some of the stuff that comes out of her mouth – or maybe you would since you’ve seen some of her antics first-hand! I can honestly say that for me, she makes life worth living.

rockinbbar: Thank you sir. Yep, EP hospitals leave a lot to be desired. I am also extremely leery of all the messikan doctors here who received their PHds from Mexican Universities. It’s a fact that American universities are an order of magnitude more rigorous. It’s also a fact that when American students fail to get accepted into an American medical school they often resort to attending Mexican medical schools. Go ahead and call me a racist, but I’m not thrilled at the prospect of my sweet daughter being treated by a swarthy Mexican who received his Phd in Guadalajara and thinks leeches are an effective treatment.

wabigoon: Thank you. Your prayers are appreciated.

kevinJ: Thank you. I understand the situation and that these doctors are extremely busy, but you’re correct that the wait time has been both excessive and unacceptable. They have already ruled out anything to do with her heart. EKG is normal, as stated. Yes, blood work was done more than once. I do not know all the results yet. The dehydration hypothesis was suggested and could indeed be the cause – or least a contributing factor, but I find it unlikely as I make certain she has an insulated cup of ice water at all times and I’m quick to refill it and get more ice as needed. She drinks a lot of water. However, with the temp. hovering around 107° - 108° and spiking at 113° the last few weeks, it’s certainly a possibility. One of the doctors thought it might be a viral infection that is causing the rapid heart rate. I think this is a real possibility since she was once again afflicted with the messikan stomach bug about a month ago – which I’m sure she picked up from some kid at the swimming lessons the ex insisted upon. I wouldn’t be surprised at all to learn that the virus is still in her system, wreaking havoc in her little body. Regarding her endocrinologist (and this fits right in with the misdiagnosis problems we have experienced here in EP) I’d rather not get into the details right now, but suffice it to say that her messikan, Juarez educated endocrinologist diagnosed her with an extremely rare type of hormonal/genetic disease (likely because this is his specialty), which requires daily meds, monthly injections and require me to pack an emergency injection at all times. (With your experience you might be able to guess the disorder). The thing is, that for her to have this disease, both parents (or both our families) must be so afflicted, which is not the case. Another disagreement between me and the ex was to get a 2nd opinion regarding this diagnosis, which she finally agreed to after 3 months of me advocating for it. The endocrinologist who provided the 2nd opinion is currently practicing at Cook Medical and previously practiced at Philly Children’s and he is recognized as a top endocrinologists. His opinion contradicted her El Paso endocrinologist. After studying her case for 3 weeks he does not believe the original diagnosis is correct and has ordered genetic testing to prove it, which was approved by her insurance yesterday. So we shall see who was correct – me or the highly touted Mexican endocrinologist here in EP. Also, I was unaware that a virus can be responsible for an elevated heart rate – thanks and thank you again for the information you provided as well as your thoughts and prayers.

bowfisher: Thanks, but no spider bites lately.

Slum: Thanks. I don’t know her hemoglobin level. I asked, but have yet to receive an answer. I do not have access to her portal or the lab results. I will make an inquiry. Also, you are correct that they the MSM is lying about Kung Flu and making up all sorts of false symptoms. I don’t believe a damn thing I hear on the news. As an example, the MSM is telling everyone that every hospital bed it taken and hospitals are overflowing in TX. Complete BS. The MSM is in the business of spreading fear and ensuring Biden wins the election.

smarquez: I am unfamiliar with WPW. Is the link you posted correct – it seems to be about a Portland football coach who was fired b/c he’s a police Sergeant – but I only scanned the article.

Jerry: Thank you. I will take that under advisement if it come to it, which is rapidly approaching.

Happy_Camper: Thanks. Yes, I am familiar with the information you posted and I am taking anything they tell me with a healthy dose of skepticism and I have already discussed some of it with the ex.

renegade50: Thank you. I am doing what I can from afar since they won’t let me into the hospital. I like to think that the hospital is altruistic, but the unfortunate reality is that money talks. We’re praying for the best and like you, I hope it’s a simple issue that will be pinpointed sooner rather than later.

2ndwind: Thank you. Sorry to hear Jayne may have been exposed, but I’m happy to know you have a plan. I would like to think that the hospital is working in my daughter’s best interest, but if the experience we’ve had so far is any indication, I’m not overly hopeful. Generally, the ex and I are fine in situations such as these. I initially offered to relieve her, but that is not possible due to the hospital’s procedures so I am doing all I can from afar to help both her and my daughter. I am thankful that she is able to be there for my daughter during this difficult time. I am not initiating any arguments with her regarding the genesis of the problem – there will be plenty of time for “I told you so’s” at a later date – preferably when the ex comes up w/ yet another cockamamie idea. Right now, it’s important we remain strong and present a united front for our daughter.

RemModel8: Fabulous idea, but I’d rather not have to deal with the very real possibility of incarceration, and the associated expense, should I decide to take your advice.

ribka: Thanks but I believe we are past that at this point - heart-related issues have already been ruled out by the doctors.

jfruser: Yep. I wanted to take her to Children’s Medical in Dallas in the first place, unfortunately, her insurance would only approve a facility/doctor locally – in EP.








Terrible quote Fu from me I'm sorry to throw confusion at you in this trying time for you. would have thought that some medical professional would have looked at WPW by now. I only brought it up since I saw it a few times as a paramedic and the first time I saw it, it scared the bejeesus out of me.
https://www.mottchildren.org/conditions-treatments/ped-heart/conditions/supraventricular-tachycardia


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Update: Julia is getting more and more stressed and anxious as her time at the hospital increases. Lots of crying now. I feel so bad for her and I wish I could be there with her. I'm sure she is very frightened. This breaks my heart.

The Pediatric Cardiologist saw her this AM and has ordered an echo cardiogram and an ultra sound. He said that sometimes people just have this increased pulse problem and that she may need a low-dose beta-blocker. I pray that is not the case. We will know more when the test is complete. Julia will remain at the hospital another night. I sure hope they can pin down this issue.

*****

Ed: Yep. I remember that as well and I again extend my thanks. I hope you received my reimbursement. Unfortunately, after a couple of months my stores began to dwindle and I had to venture out to replenish the stock.

pahick: Thank you. I asked my ex to find out how, exactly, the Thyroid test was administered. Her adrenals are a bit out of whack, but she’s been on a medication for several months now for that. The Endocrinologist has assured us that the issues she is now experiencing are not related to this medication, but I’m not so sure. I will look into Hashimotos and Graves.

smarquez: No problem and I asked the ex to speak to the pediatric cardiologist about SVT.

Last edited by High_Noon; 07/25/20.

l told my pap and mam I was going to be a mountain man; acted like they was gut-shot. Make your life go here. Here's where the peoples is. Mother Gue, I says, the Rocky Mountains is the marrow of the world, and by God, I was right.
- Del Gue
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Thank you, Noon, I'm still thinking, and praying for her.


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Thank you sir.


l told my pap and mam I was going to be a mountain man; acted like they was gut-shot. Make your life go here. Here's where the peoples is. Mother Gue, I says, the Rocky Mountains is the marrow of the world, and by God, I was right.
- Del Gue
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I'm so sorry you are going through this.

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High Noon, you said your daughter has been treated for adrenal issues. Though her Endo says that doesnt have anything to due with her high heart rate, id seek a 2nd opinion. Like I said above, certain thyroid conditions can cause high/fluctuating heart rate, so can adrenals. I surely am not a doc, but id be pressing them to take another look at these 2.

As far as anxiety, thats normal under the circumstances, but uncontrolled anxiety can exacerbate the issues at hand. Might be worth asking for low dose benzo like xanax for short term to keep her calm?

I really feel for her, and your family. Continued prayers!

PS...Id not consent to beta blocker unless its absolutely needed until they find the REAL cause. Does she have Cushings Syndrome? Addisons Disease? Whats the reason for adrenal treatment?


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Update: We do not have the results of the echo cardiogram yet, but they gave her a beta blocker, with my ex's consent. The beta blocker has made her feel much, much better. If the echo cardiogram is negative I believe she will be discharged and continue to see the pediatric cardiologist on an out-patient basis until they can get all this sorted.

MM: Thanks.

pahick: Thanks. I agree with you regarding a second opinion and we already have a call into her other endocrinologist - the one from Cook's Medical that has contradicted the El Paso endocrinologist's diagnosis. They gave her Ativan to help with the anxiety.

Last edited by High_Noon; 07/25/20.

l told my pap and mam I was going to be a mountain man; acted like they was gut-shot. Make your life go here. Here's where the peoples is. Mother Gue, I says, the Rocky Mountains is the marrow of the world, and by God, I was right.
- Del Gue
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Prayers sent.

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This verse just popped up on my phone and it seems appropriate. I am praying for you and your daughter.

Like as a father pitieth his children, so the Lord pitieth them that fear him.
Psalms 103:13 KJV

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Kevin, we are happy to hear that the "authorities" seem to be getting a handle on this problem.
We are also hoping Julia can return to a (semi/new) normal lifestyle in the very near future.
God bless the three of you.


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No new updates, but Julia is feeling much better. I am not sure when she will be discharged, hopefully tomorrow. I don't like the idea of her going home without knowing the cause of her Arrhythmia.

*****

brassman & rufous: Thanks.

Mark: Thank you. I do not know how long it will be until she can resume normal activities. I still think that all this was caused by the medication her EP endocrinologist prescribed. No one else here thinks the same, but the fact is that these issues only manifested after she had been on them for a few months. Still waiting to hear back from the endocrinologist in Dallas who will hopefully confirm my hypothesis or at least have some better news. I know Julia must under more testing before they can figure out what is causing these issues.


Last edited by High_Noon; 07/25/20.

l told my pap and mam I was going to be a mountain man; acted like they was gut-shot. Make your life go here. Here's where the peoples is. Mother Gue, I says, the Rocky Mountains is the marrow of the world, and by God, I was right.
- Del Gue
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Sending up prayers for your girl and your family. I know exactly how you are feeling.
as my youngest son has had heart issues since birth.
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Some personal experience to share. About 7 years ago, age 35, I ended up in the ER with a heart rate of 188. Just out of the blue. Wake up one morning and had the hiccups. Got a little short of breath before I got rid of them. When I did heart was racing. After about an hour I knew something was not right. First stop was the walkin clinic. Doc checked my heart rate and he looked downright scared. Called 911 got taken to ER via ambulance.

Had SVT. Save all the details of the ER. But in the end they actually had to stop my heart to "reset" it. No issue could be found "something" with the electrical of my heart. Only issue found at subsequent doctor visits was slightly elevated resting heart rate and high blood pressure. Course of action was medication and wait and see. Took a little bit playing around to get meds right. I never had another instance of the SVT. Took things a little easy for about a week. Doctor's advice was keep to the slower side of normal routine.

From a couple doctors this is what I was told. As hard as it can be to accept there is not always an answer. Sometimes things just happen with the electrical of the heart. While it is serious wait and see is sometimes all they can do. It can be just a one time thing the while you should be mindful of it is not something to worry over.If medication controls it,digging for the "problem" is usually not done.

Now with a much younger person I would assume and hope things would be looked at a little harder. As a parent demand to have them look as far as you think they need to. But as hard as it can be every now and then take a step back and see that maybe they have done everything they can and should do in the situation. If your daughter is healthy and stable in the near term don't worry about the long term. Keep the long term in mind but don't worry about it.

Thoughts and Prayers that this is a just a bump in the road that is life.

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It would be nice to see her ECG when her pulse was high. SVT is easy to recognize, but her tracing would be normal between episodes. Sinus tachycardia is always secondary to something else, most causes are easily diagnosed and treated. WPW has a characteristic abnormality on ECG, so would be hard to miss. I wouldn't criticize the care she has received, COVID testing was appropriate. Did she ever have a fever? Cough?


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